This book, built around Ed’s journal, chronicles Ed’s experiences as a carer following his wife Mary’s diagnosis with Lewy body dementia.  Students and experienced health professionals are rarely afforded such an insight into how their words and actions are interpreted by, and impact upon patients, families and friends.  Ed’s Story provides information and education resources related to dementia care.  Although specifically focusing on Lewy body dementia, the resources are transferable to caring for people with any type of dementia. The freely available resources are suitable for use by students in the health professions, educators, formal and informal carers.

Stephen Anderson, Bronwyn Mathiesen, Adele Baldwin, Michael Inskip, and Marie Bodak, David Lindsay, Kellie Johns

Creative Commons: Attribution-NonCommercial-NoDerivatives (CC BY-NC-ND)

A Long Goodbye: Ed and Mary's Journey with Lewy Body Dementia

by Stephen Anderson, Bronwyn Mathiesen, Adele Baldwin, Michael Inskip, and Marie Bodak, David Lindsay, Kellie Johns•Student Price: FREE

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